NICU, Nov/Dec 2015.
One thing I hate greater than anything since turning into a medical father or mother is seeing others feel hopeless. In fall 2015, I gave start to my daughter Aubby, who got here into my world with a terminal prognosis of Trisomy 18 (Edward Syndrome, the second most prevalent trisomy after Down Syndrome), and from that experience, I grew into medical parenthood.
I’ve needed to be taught to confidently converse up for myself and my kid’s wants and trust my own judgment on medical care within the face of medical doctors who believe Trisomy 18 is futile for placing forth effort. Most chromosomally challenged kids like mine perish prenatally or largely below age one, however I’ve grown my girl previous age 5. Knowing find out how to self-advocate is a vital part of how I do it.
It was during the latter half of …Read more